On Thursday August 13, 2015 we made a trip back to Jackson to Batson Children's Hospital to visit with the pediatric surgeon Dr. Berch. It almost seemed surreal to be back where things all began for Aiden. In fact it was exactly five years and one week to the day that Aiden's omphalocele closure surgeries were complete!
We had to go back to see Dr. Berch becauser Aiden's peg tube opening has not closed as it should since the feeding tube was removed. Many times once the tube is out there is a spontaneous closure and no stitches or surgery are needed. This has not been the case for Aiden. Since it was removed the hole has partially closed but not completely. It has continued to leak stomach contents and required a bandage to be worn for the past month. After talking with the surgeon, He explained that many patient's that have a feeding tube placed in infancy have to have surgery for closure. Since Aiden had the tube for several years, a well formed tract developed to his stomach where the feeding tube was placed. It is very hard for such a mature opening to spontaneously close once it has been present for so long.
We knew the words were coming..... but it made our hearts sink to hear that Aiden would once again have to be taken back to surgery. The feeding tube closure surgery was described to be a very simple procedure. They will have to staple the opening into the stomach closed and then suture the outer skin. We are not at all excited about ANOTHER surgery. I know how great the surgeon is that will be performing the procedure and that the surgery should be a very simple procedure. However, Aiden's abdominal organs are not placed exactly the same as everyone else. That makes any surgery involving these organs a little bit more tricky.
Please remember us in prayer as we head back to Jackson for the surgery Monday morning. There is extra sense of nervousness that we have just having to be back on the surgery floor at Batson. It brings back a flood of emotions that we have blocked out for several years now. I'm thankful knowing the hole will be closed and we no longer have to worry about a feeding tube. It's such a blessing that Aiden has progressed and healed so well from all that he has been through. I know without a doubt that God is watching over Aiden! Thanks in advanced to all our family and friends that will be praying for us. Your prayers have brought us through so much! We are richly blessed and grateful for all GOD has done and continues to do in our little miracle's life. Psalms 40:5, Joshua 1:9
This blog was created in hopes of sharing Aiden's special story with our family and friends. We also hope our story can help other families going through a similar situation. We hope you can get a better understanding of what an omphalocele is and how blessed we are to have such a special gift from God in our lives.
GI associates appointment
We went to Jackson today for a big GI appointment. We are excited to say that it has been about six months since having to use Aiden's peg tube. He continues to grow and is charting at about the 10th percentile on the growth chart for his age. He weighs 34.6 lbs and is 43.5 inches tall. We saw the nurse practitioner today and she feels that Aiden is ready to have his tube removed. He continues to show growth without the need for tube feedings. The NP will be sending the notes to Dr. Shannon for her to decide if she will be the one to remove it or the surgeon at UMC. We are so excited. Aiden is so happy and proud! He enjoyed a special ice cream treat today for such good news. We have worked really hard to get to this point with his eating. We are so thankful to God for each step he has carried us along this journey with Aiden. We appreciate each and every prayer for Aiden since his birth. We also want to give special thanks to Melissa at Kids spot. We never could have gotten Aiden to eat and weaned off the tube without your outstanding therapy!! We can never thank you enough!!
Love and God Bless,
The Clemmons family
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