This blog was created in hopes of sharing Aiden's special story with our family and friends. We also hope our story can help other families going through a similar situation. We hope you can get a better understanding of what an omphalocele is and how blessed we are to have such a special gift from God in our lives.
Plans for Surgery
It has been several months since I have updated. Aiden has been sick on and off for the past three months with ear infections. Each time it leads to him having about a week long of either diarrhea or vomitting or both. He will not eat for a week each tome so this really hinders his feeding therapy. We also end up having to slow down his tube feedings and dilute his high calorie milk so that he can tolerate them without the sugars causing further diarrhea. Aiden now weighs between 20 and 21 lbs. Each time he begins to put on some ounces the cycle of stomach upset return. This is very frustrating for us as we really want him to gain weight! We are hoping that soon this will be resolved. The ENT doctors have finally determined that his tubes placed last October are no longer working properly. This is causing the fluid to build up in his ears leading to the infections. We are planning for Aiden to go back to surgery on August 13th for them to take out the old tubes and place new ones. We are hopeful that this will be successful in preventing Aiden from further infections. We hope that this is the only issue leading to the recent stomach problems and that they will resolve as well so Aiden can FINALLY put on a few pounds!!! Prayers are appreciated as Aiden goes for his ninth surgery since birth :(
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